Hackney Autism Alliance terms of reference
Note that this document is also available as a PDF.
- Purpose of the group
- The Autism Alliance Board is a consultative body of stakeholder
representatives committed to working together to help autistic
people and their carers in Hackney lead more fulfilling and
- Hackney Council and City and Hackney CCG have established an
Autism Board in response to the Autism Act (2009) and the National
Autism Strategy (Think Autism : the strategy for adults
with autism in England – 2014).
- It is recognised that there are a number of different terms used
to describe autism, for example, autistic spectrum disorders or
conditions, Asperger syndrome or neuro-divergence. For consistency
with the national strategy and guidance and the Autism Plan for
Adults in Hackney, the terms ‘autism’ and ‘autistic’ will be used in
the context of the Autism Alliance Board. Identify-first
descriptions (e.g. ‘autistic’ or ‘autistic resident’ rather than
‘resident with autism’) should be used.
- Aims and responsibilities
- To develop and agree the Autism Strategy for Adults in Hackney
from 2017 to 2020. The intention is that this Strategy will also
cover young people transitioning from Children’s to Adults Services.
- To govern the implementation of the Autism Plan to ensure its
effectiveness and that it remains responsive to local need and
national guidance and requirements.
- To provide progress reports to the Integrated Care Programme twice
a year and an annual progress report to the Health and Wellbeing
- To receive regular reports from work groups that feed into the
overall work of the Board on key deliverables such as community
engagement, work force development, service planning and autism
- Through a well-developed model of involvement, capture the widest
possible range of autistic people and carer voices including those
hard to reach.
- Share and disseminate information about the development of
services and best practice examples to promote the improvement of
- To be advised on the use of future grant funding, where available,
to be consulted on services that meet the objectives of the plan.
- Link with other partnership boards in Hackney, including the
Mental Health Programme Board and the Learning Disability Section 75
Commissioning Board to ensure they are kept up-to date with the work
of the Autism Board
- Link where appropriate with Autism Boards in other local
authorities and the regional Autism Network, to share ideas and best
- Stakeholder groups represented on the Autism Alliance Board:
- Autistic individuals
- Family carers
- Adult Learning Disability Commissioning
- Adult Mental Health Commissioning
- Adult Carers Commissioning
- Learning and Development
- Adult Social Care Assessment and Care Management
- Children’s Services
- City and Hackney CCG
- East London Foundation Trust
- Specialist and general service providers
- Advocacy service
- Job Centre Plus
- Voluntary and community sector organisations
- Public Health
- Other representatives may be invited to attend as appropriate to
the work of the Board.
- Members who cannot attend meetings of the Board should make this
known in advance and where possible, organisations should send a
suitable substitute (by prior arrangement).
- Members of the Board must adhere to the ground rules relating to
behaviour and communication established by the Board. If they do not
they may be asked to leave the meeting or step down from the Board.
- Recognising the potential for a conflict of interests, provider
representatives must ensure they do not explicitly or tacitly use
the Board as a platform to promote their own organisation. If they
do, they may be asked to leave the meeting or step down from the
- Meetings will be co-chaired by the Director of Adult Services or
delegated as appropriate to a senior officer in the Council.
- The other co-chair will be autistic.
- The Board will not be quorate unless two representatives from
Adult Social Care, one provider representative, two autistic
residents and one carer representative are in attendance.
- Notes from the meeting will be available on the Council website.
- Client and Carer involvement and representation
- The Board must include in its membership four autistic people and
two carer representatives. Autistic people should be represented on
all the work streams/groups linked to the board.
- A model of involvement will be developed that enables autistic
individuals and carers to provide their views on the Autism Plan and
work of the Board in advance of meetings of the Board and in a range
of different ways.
- Agendas for each meeting will be made available on the council
website and circulated electronically to anyone wishing to receive
- An involvement tool will be developed and trialled, aimed at
helping individuals and groups think about and provide views on
issues and questions relating to the development of the local autism
- One of the key work streams that will report into the Autism Board
is progress on community engagement. This will focus on
communication with carers and autistic people through the
development of a range of engagement tools, including support groups
and the development of an online forum.
- The model of involvement will be reviewed after the first year of
the Board’s existence.
- Meeting arrangements
- The Board will meet a minimum four times per year.
- Meetings will take place from 10.30am to 1pm, including a comfort
- Meetings will take place at a location that is deemed to be
accessible, have adequate IT facilities and good public transport
- Papers will be circulated a minimum of one week prior to meetings
of the Board.
- Responsibility for taking minutes for the meetings will sit with
Adult Services and agreed by the Board at the following meeting.
Draft minutes will be agreed by the Director of Adult Services, made
available on the council website and circulated to members of the
Board within one month of each meeting.
- Actions agreed by the Board will be recorded in the meeting
minutes. The person or people responsible for each action will give
an update on progress against the actions when the Board checks the
- Papers and presentations
- Papers and presentations should be written in Plain English.
- There may be occasions when Easy Read format papers or
presentations are needed. The Learning Disability Commissioning team
can advise on production of Easy Read material.
- This Terms of Reference will be agreed at the first meeting of the
Board and reviewed annually.
Document Number: 17870440
Document Name: Autism AB TOR Updated Jan 2017